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As a retired healthcare provider, I’ve had a front-row seat to countless patient journeys. Yet, nothing quite prepared me for managing my own recent health challenges, particularly the new feeding and trach tubes, ventilators, and weekly infusions. This dual perspective has shown me the gap between clinical advice and real-life at home. Seeing the same questions surface repeatedly in support groups inspired me to create Tubie Tutor – a place to share the practical insights I’ve gained, making the start of your journey a little easier.

Here are some of the practical topics we’ll explore together in the weeks ahead on Tubie Tutor:

Understanding and Managing Your Trach Tube:

  • Getting Started with a New Trach Tube: How much help do you really need?
  • Daily Trach Tube Care: Step-by-step cleaning and hygiene.
  • Essential Trach Tube Equipment: What you need and why.
  • Common Questions About Living with a Trach Tube: Your FAQs answered.

Navigating Home Ventilator Use:

  • Living with an Invasive Ventilator: What to expect through your trach tube.
  • Understanding Your Ventilator Settings: Key numbers to know and document for hospital visits.
  • Caring for Your Ventilator Components: Maintenance for tubing, humidifiers, and more.

Mastering Your Feeding Tube:

  • Feeding Tubes: Pros and Cons: Is it the right choice for you?
  • Frequently Asked Questions About Feeding Tubes: Practical answers for daily life.

Understanding Home Infusions:

  • Home Infusions of Immunoglobulin (IG): What to know about IVIG and SCIg.

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